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  1. #1
    Bradley is offline Senior Member
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    Default Need serious help rehabbing legs.

    There's nothing broken in my legs, as far as I know, and according to lots of doctors and PT's. But something is definitely wrong, and I can't get a diagnosis and thus can't determine exactly what needs to be done to fix it. My quads don't work right. It feels like my upper and lower legs are bent or twisted with respect to each other. But PT's don't believe me, or think everything is fine when I know it's not. I spoke with a well known cross fit / mobility guru, who seemed to take my complaints seriously, but I without in person evaluation, I don't think it's possible to really figure out exactly what's wrong. And without knowing what's wrong, it's utterly demoralizing, and I have little motivation to just go through various exercises in the hope that something will help, because I still don't know what's wrong. It's just guess work.

    How do I find someone who will work with me intensively and do whatever it takes to find out exactly what's wrong and how to fix it. Doctors have utterly failed me, and PT's are usually unable to give me more than a few minutes of their time. I'm losing my mind over this.

    I've been told nothing is wrong and it's just bodily dysmorphism, with several people here voicing that opinion, but I'm certain there is something physically wrong with my legs, because I can physically feel it constantly, though not likely anything broken.

  2. #2
    EXERCISEI.COM is offline Junior Member
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    Default The trouble with seeking/accepting advice on forums.

    Bradley,

    Bodily dysmorphism is a mental disorder. Unless the respondents to your calls for advice are experienced professionals and they spent more than the time it takes to read a post, I wouldn't count that as a proper diagnosis.

    You mentioned you've seen many doctors and PTs. What kind of docs? If you don't mind being specific, what tests have been done, what imaged studies completed? I hear people saying all the time the doctors "can't" give them an answer, but what questions are you asking?

    Are you impacted by actual dysfunction?

    Your legs "don't work right", but you describe the issue as being a "feeling" of having twisted limbs. What does "don't work right" mean? Can you walk, can you bend your legs, sit, stand?

    The feeling you're describing could be the presentation of a pathology that has nothing to do with your legs.
    Last edited by EXERCISEI.COM; 12-04-2011 at 09:17 PM.

  3. #3
    Dr Pars is offline Junior Member
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    Default

    Bradley-
    What exactly are you trying to rehab? I assume that you have suffered an injury of some type and that you are trying to "rehab" from that injury. I take it personally when you say "doctors have utterly failed me". Can you tell me in what specialty these doctors practice? Who is the cross fit / mobility guru and what kind of advice were you given? ExerciseI above gets it - you need to find a physician who specializes in diagnosis. What is your height and weight? Who performed the neurological examination on you? Were your reflexes asymmetric? Is there evidence of an upper or lower motor neuron lesion? If you tell me where you live, I can probably find someone who can work with you. You can't just "rehab" everything Bradley - the well-trained and experienced physician should be able to help you find that elusive diagnosis. I would not give up on the medical establishment just yet - we are not all incompetent.

  4. #4
    Dr Pars is offline Junior Member
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    Bradley-
    I just noticed that you posted about this issue in July of 2011. I highly recommend you seek out a consultation with a neurologist as soon as possible. Please keep in touch and let me know what happens. It sounds like you need an EMG to assess for pathology.

    Dr. P

  5. #5
    Bradley is offline Senior Member
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    Default

    Quote Originally Posted by Dr Pars View Post
    Bradley-
    I just noticed that you posted about this issue in July of 2011. I highly recommend you seek out a consultation with a neurologist as soon as possible. Please keep in touch and let me know what happens. It sounds like you need an EMG to assess for pathology.

    Dr. P
    I've been posting about this for several years.

    What would a neurologist have to do with this? I may have had an EMG a while ago. I went to a physiatrist. I think she did an EMG on me, or another three letter acronymn starting with an E. I think it was her sticking a tiny needle in places and testing electrical signals, or something like that, but I don't really remember. She didn't find anything though. That was several years ago though.

    I have noticed a lot of twitching in my muscles, especially when I try to sleep on my back(I always end up on my side.) That's a nerve thing, obviously and I've wondered what that may mean.
    Last edited by Bradley; 12-04-2011 at 09:52 PM.

  6. #6
    Dr Pars is offline Junior Member
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    Bradley-
    That actually sounds like an EMG. EMG's are operator dependent and the results can vary from physician to physician. The next best diagnostic test will be an MRI of your brain as we always try to rule out worst case scenarios. Also, MRI of your spinal cord would be an important consideration as well for you and your physician to discuss. Have you had any changes in your vision, bowel or bladder habits, change in gait, or any other neurological symptoms? Keep me posted.

    Dr. P

  7. #7
    Dr Pars is offline Junior Member
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    Default

    And what kind of physicians (what is their medical specialty or board certification) have you consulted with?

  8. #8
    Bradley is offline Senior Member
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    Default

    Quote Originally Posted by Dr Pars View Post
    Bradley-
    That actually sounds like an EMG. EMG's are operator dependent and the results can vary from physician to physician. The next best diagnostic test will be an MRI of your brain as we always try to rule out worst case scenarios. Also, MRI of your spinal cord would be an important consideration as well for you and your physician to discuss. Have you had any changes in your vision, bowel or bladder habits, change in gait, or any other neurological symptoms? Keep me posted.

    Dr. P
    I'm pretty sure it's a musculoskeletal issue, just by the way it feels.

  9. #9
    Dr Pars is offline Junior Member
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    B-
    You are on the right track. Where do you think the nerves come from that supply the muscles?

  10. #10
    praetorian is offline Senior Member
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    Default Asking questions, getting answers...even the answers you don't want.

    Quote Originally Posted by Bradley View Post
    I've been posting about this for several years.

    What would a neurologist have to do with this? I may have had an EMG a while ago. I went to a physiatrist. I think she did an EMG on me, or another three letter acronymn starting with an E. I think it was her sticking a tiny needle in places and testing electrical signals, or something like that, but I don't really remember. She didn't find anything though. That was several years ago though.

    I have noticed a lot of twitching in my muscles, especially when I try to sleep on my back(I always end up on my side.) That's a nerve thing, obviously and I've wondered what that may mean.
    "What would a neurologist have to do with this"

    Bradley,

    In 1986, my wife started to experience discomfort and a "feeling something just wasn't right".

    Laying in bed at night, her arm would twitch. Sitting at church, she would experience an "electric shock" in her legs that would cause them to twitch and shake. She felt a strange "twisting" sensation in and around her ribcage.

    We did the normal thing, went to the GP, he ran a ton of tests, drew a gallon of blood, poked, prodded, checked for spots in her eyes, swelling in her ears. Nothing.

    We felt, in some small way, the same frustration you are expressing.

    This went on for years. Finally, we went to a neurologist and had the proper studies performed.

    She was diagnosed with multiple sclerosis in 1993.

    Now, I'm not trying to scare you, but I cannot urge you more strongly to see a specialist, in my opinion, a neurologist, immediately.

    Forums and the advice postings found on them are cool, but this has gone on long enough, you deserve a professional's attention.

    The one message I've heard repeated over and over is that a bi-lateral pain/discomfort/dysfunction is almost always a manifestation of a central (read CNS) issue.

    I'm a layperson, just a knuckledragger, but if this is something that has impacted you for this long, it's time you let a medical professional give you an answer, even if it's not an answer any of us want.

    If you feel comfortable enough, please let us know what you find out.
    Last edited by praetorian; 12-04-2011 at 10:50 PM.
    Mark Toomey, Senior RKC, CK-FMS, CSCS

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