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Thread: i need a doctor

  1. #11
    Maverik is offline Junior Member
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    Bradley,
    How was the Dr.'s hypothesis formed? If it was via email correspondence then its probably not worth much. People often search for one piece of info that confirms their beliefs and disregard the numerous opinions/evidence that oppose it....that's bad science.

    So, you have trouble with the lower-body and painful shoulders, elbows and hands? This certainly sounds like it could be a systemic issue (inflammation) that could be more complicated than alignment.

    Have you had an fMRI done? I spent time during my PhD training in Albany doing research using brain imaging tech and it can be a great tool for illuminating difficult to diagnose issues.

    *Lets see the answers to the numbered questions (1-6) in my previous post...especially the video. This will increase the chances of someone on the forum being able to help you with advice about mobility etc or potential specialists.

    What are you currently doing to mitigate your symptoms?
    Diet?
    Current rehab protocol with details?
    Being sedentary and waiting for the perfect prescription of exercises, sets/reps, frequency from an "expert" is probably a bad idea. Hopefully that is not what you're doing.

    Chronic injury is deflating, but there is almost always something that can be done.
    Keep your head up!
    Matt
    Moses Correa likes this.

  2. #12
    Bradley is offline Senior Member
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    Quote Originally Posted by Maverik View Post
    Bradley,
    How was the Dr.'s hypothesis formed? If it was via email correspondence then its probably not worth much. People often search for one piece of info that confirms their beliefs and disregard the numerous opinions/evidence that oppose it....that's bad science.

    So, you have trouble with the lower-body and painful shoulders, elbows and hands? This certainly sounds like it could be a systemic issue (inflammation) that could be more complicated than alignment.

    Have you had an fMRI done? I spent time during my PhD training in Albany doing research using brain imaging tech and it can be a great tool for illuminating difficult to diagnose issues.

    *Lets see the answers to the numbered questions (1-6) in my previous post...especially the video. This will increase the chances of someone on the forum being able to help you with advice about mobility etc or potential specialists.

    What are you currently doing to mitigate your symptoms?
    Diet?
    Current rehab protocol with details?
    Being sedentary and waiting for the perfect prescription of exercises, sets/reps, frequency from an "expert" is probably a bad idea. Hopefully that is not what you're doing.

    Chronic injury is deflating, but there is almost always something that can be done.
    Keep your head up!
    Matt
    I'm not aware of any evidence that opposes my hypothesis. Just saying.

    Inflammation may be a problem. But I don't think it is THE source of any of my problems. My leg problems are due to alignment. Maybe inflammation led to bad alignment, but at this point its an alignment problem. If it were mere inflammation I could force my legs into a position that was comfortable, but I can't.

    My left shoulder hurts because as a adolescent I used to watch tv for extended periods sitting on my side resting on my left arm, and with my shoulder up near my neck. Sitting for a while would lead to soreness in a particular spot of the anterior deltoid. That particular spot is where i get pain in my left shoulder now. So it's obvious sitting like that caused it.

    My elbows started popping when I started sitting them on desks a lot during college. I assume it's related to that.

    My hands? Who knows. I have an odd bony growth on my left hand. Maybe it has something to do with that. My left hand certainly bothers me more.

    fMRI? You think it's a brain issue? Certainly this has affected my psychology, but it's not originating in the brain. Or is there some other aspect I'm not getting with regard to fMRI?

    I'm not sedentary at all. I go to the gym 5+ days a week and try as many things as I can to work around my issues.

  3. #13
    Maverik is offline Junior Member
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    Bradley,
    You have ignored the important questions from both of my posts.
    I'm trying to provide you with the best opportunity to acquire meaningful advice on a "forum".
    Again:
    Answer questions 1-6 with video confirmation
    What is your diet, typically?
    What are you doing at the gym 5 days a week? Provide detail.
    Add whatever info you think would be beneficial.
    What correctives or rehab have you done already?

    It appears as though you want a name of someone that can fix your problem? (this is understandable) Without proper background info...nobody will be able to provide anything other than the name of a friend of their "business" etc or a total shot in the dark.

    Great thing about the internet and modern information access is that unless you need surgery the answers are most likely right here on the interweb.

    Matt

  4. #14
    Bradley is offline Senior Member
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    Quote Originally Posted by Maverik View Post
    Bradley,
    You have ignored the important questions from both of my posts.
    I'm trying to provide you with the best opportunity to acquire meaningful advice on a "forum".
    Again:
    Answer questions 1-6 with video confirmation
    What is your diet, typically?
    What are you doing at the gym 5 days a week? Provide detail.
    Add whatever info you think would be beneficial.
    What correctives or rehab have you done already?

    It appears as though you want a name of someone that can fix your problem? (this is understandable) Without proper background info...nobody will be able to provide anything other than the name of a friend of their "business" etc or a total shot in the dark.

    Great thing about the internet and modern information access is that unless you need surgery the answers are most likely right here on the interweb.

    Matt
    Going through the whole history takes time. I've addressed what I could address quickly and easily before committing time to laying everything out.

  5. #15
    Wolfeye is offline Senior Member
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    Bradley: Do you think you have a joint problem? Like arthritis or calcification of the joints or something? It seems like you're screwed-up in various areas (not to be insulting or anything). Maybe start eating stuff that's good for the joints? Don't know what things are good for that off the top of my head, but cinnamon seems to be good for arthritis pain & various things from fish are supposed to be good for the joints.

    What happens when you do things? Do you just get pain or do you start feeling things come apart or what?

  6. #16
    Bradley is offline Senior Member
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    Quote Originally Posted by Wolfeye View Post
    Bradley: Do you think you have a joint problem? Like arthritis or calcification of the joints or something? It seems like you're screwed-up in various areas (not to be insulting or anything). Maybe start eating stuff that's good for the joints? Don't know what things are good for that off the top of my head, but cinnamon seems to be good for arthritis pain & various things from fish are supposed to be good for the joints.

    What happens when you do things? Do you just get pain or do you start feeling things come apart or what?
    Actually doing things feels better than not. Squatting WITH weight feels better than without. Maybe I just don't notice all the creaking when I do it with weights. I can deadlift fine, but it hurts my back. Not during though. During the lift it feels just fine, aside from the quads feeling out of whack.

    My legs feel more normal when I'm moving quickly, as in playing racquetball, even though basically all the power in my legs is gone.

    No arthritis. In general, my joints feel completely fine. Fingers, toes, almost all of my spine, feel fine. I don't notice them. Except for the ones I've mentioned earlier.
    Last edited by Bradley; 07-16-2014 at 08:59 PM.

  7. #17
    Chris Hansen is offline Senior Member
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    Quote Originally Posted by Bradley View Post
    I can deadlift fine, but it hurts my back. Not during though. During the lift it feels just fine...
    Not sure if my case is anything like yours but I fit the above description for half my life. In my case, the glute medius had kind of shut off and so the si joint was under a lot of stress. Deadlifting felt fine at the time but then I paid for it over the next several days. It took years to find someone who could identify what was going on and give me a strategy to fix it.

  8. #18
    Bradley is offline Senior Member
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    Quote Originally Posted by Maverik View Post
    Bradley,
    You believe that you have a unique and difficult to diagnose problem. You have seen some professionals about the issue and have not received the results desired....Yet you think that someone on the forum will have insight on your uncommon issue or be able to provide the name of a specific Dr that specializes in your unknown problem?

    That is probably not going to happen
    I get it...you're frustrated and desperate to find an answer.

    I bet there are some excellent PTs, DOs, and movement specialists on this forum from time to time.
    My recommendation is:
    Create a post that contains the following information to guide any potential help
    1. List age, weight, height and approx body fat %
    2. How long have you had the problem?
    3. What rehab/prehab protocol have you used? For how long? With complete compliance?
    4. Athletic background
    5. Provide (whole body) video footage of your a) bodyweight squat b) BW lunge c) Light deadlift d) running mechanics e) core strength f) ROM limitations
    6. What does your current exercise routine look like? What does your ideal workout week look like if totally healthy? How many reps/sets for each exercise?

    This may provide someone with the potential to administer helpful info enough to do an "internet analysis".

    Silver lining: I just moved from Albany after living there for 10 years. I had two very successful orthopedic surgeries there with decent PT rehab. There are quality professionals in Albany NY.

    You can always spend your "injured" time getting your upper-body extremely strong. All is not lost!
    Good luck
    Matt
    I've had this done. Even paid to have Mike Robertson do consulting with me to develop a program. Did it once by sending him pictures and another time by driving the 700 miles to see him. But it didn't help even slightly.

    I don't need internet analysis. I need a doctor who knows alignment issues. I know what's wrong. It's an alignment issue. It's not a movement issue. 9 years of PT focusing on movement has proven that to me beyond almost any doubt. The truth is that what you ask for seems like a waste of time. It doesn't matter how much I workout. A lot, or none, it never results in any change for the better. Movement patterns and mechanics don't matter. It's an intrinsic alignment problem that tweaking a movement can't alter - no tweak has ever resulted in perceptible improvement. I've been through that numerous times. The absolute only thing that has provided any perceptible improvement was McConnel taping and that helped JUST BARELY.

    I need face to face support, an intensive program with someone who can provide ongoing, in-depth, frequent support and feedback, until we hit upon something that results in my body giving me positive feedback.

    I can't get that online.

    Purely online consultation will result in someone giving me a recommendation, then I'll ask too many questions and they'll tell me I'm being difficult. It's happened several times.

    And I don't think I can fully figure this out on my own by doing research, because I wouldn't even know where to begin. I get analysis paralysis. And it's way too frustrating. As soon as I start digging, I feel like I'm trapped in a cage not large enough to turn around in. It's been too long, and I've had too much frustration to do it on my own in that way. Anyway, it's the kind of thing I suspect can only be fixed surgically. This is why I need a doctor.
    Last edited by Bradley; 07-18-2014 at 07:03 PM.

  9. #19
    Maverik is offline Junior Member
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    Bradley,
    I thought if this issue was indeed important to you that you'd be willing to take a little time/effort to supply some info that anyone with the knowledge to help or recommend a Dr. would find useful.

    You feel that providing video and answering my inquiries is a waste of time...that's fine.

    Here are some new options:

    1. Purchase the book "Becoming a Supple Leopard". This text has a slew of very useful info...in particular the last half of the book focuses on using banded distraction while engaging in mobility exercises to retrain the body to move in proper ALIGNMENT. I know that if I sit too much my hips get out of alignment and click/painful just walking. Performing a lunge while having a very strong band pulling the leg back into proper alignment eradicates the pain within a couple minutes.
    Use: a) Rogue monster bands or b) Iron Woody Bands

    2. If you are sure that it is an alignment issue...do an extensive search for all orthopedic alignment specialists in Albany, Boston, NY, Philly. Make an appointment with a few and see if their conclusions agree. If surgical intervention is necessary, they will certainly recommend that. If a handful of Docs vote against surgery and you are undeterred from your interpretation, see option 3.

    3. Continue to see professionals/surgeons until someone validates your opinion and cuts you open.

    *From previous posts you have stated that you
    a) Have great upper body strength
    b) Have visible abs
    c) Are able to workout 5 days a week
    There are many injured individuals that would perceive these circumstances as very lucky, so don't be too discouraged.

    Good Luck
    Matt
    Last edited by Maverik; 07-19-2014 at 11:52 AM.

  10. #20
    Bradley is offline Senior Member
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    Quote Originally Posted by Maverik View Post
    Bradley,
    I thought if this issue was indeed important to you that you'd be willing to take a little time/effort to supply some info that anyone with the knowledge to help or recommend a Dr. would find useful.

    You feel that providing video and answering my inquiries is a waste of time...that's fine.

    Here are some new options:

    1. Purchase the book "Becoming a Supple Leopard". This text has a slew of very useful info...in particular the last half of the book focuses on using banded distraction while engaging in mobility exercises to retrain the body to move in proper ALIGNMENT. I know that if I sit too much my hips get out of alignment and click/painful just walking. Performing a lunge while having a very strong band pulling the leg back into proper alignment eradicates the pain within a couple minutes.
    Use: a) Rogue monster bands or b) Iron Woody Bands

    2. If you are sure that it is an alignment issue...do an extensive search for all orthopedic alignment specialists in Albany, Boston, NY, Philly. Make an appointment with a few and see if their conclusions agree. If surgical intervention is necessary, they will certainly recommend that. If a handful of Docs vote against surgery and you are undeterred from your interpretation, see option 3.

    3. Continue to see professionals/surgeons until someone validates your opinion and cuts you open.

    *From previous posts you have stated that you
    a) Have great upper body strength
    b) Have visible abs
    c) Are able to workout 5 days a week
    There are many injured individuals that would perceive these circumstances as very lucky, so don't be too discouraged.

    Good Luck
    Matt
    I'll do something better. I'll point you towards a website for the clinic that describes what I'm nearly certain my problem is, and in better medical-speak than I could.

    This is what I think my problem is:
    Rotational Deformity (Malalignment Disorder), Houston, Texas - SandersClinic.net

    Note this part in particular:

    "A rotational deformity, or malalignment, in adults can often be difficult to diagnose. Before finding an orthopedic specialist who can identify this condition, some patients may unfortunately undergo years of ineffective treatments and physical limitations."

    Describes my situation perfectly. Most doctors have told me a deformity emerging in adulthood is impossible, which doesn't make any sense to me because the bones are made of living tissue just like any other part of our bodies. If they get stronger due to weight lifting they should also be able to change shape slightly due to applied stresses. It's hard to take seriously any doctor that dismisses that possibility.

    "The rotational component of combined deformities can be diagnosed by a careful physical examination, quantified and confirmed by a specially performed CT or MRI scan."

    I've never had a CT scan on my legs, and never any special type of MRI to specifically look for this type of thing.

    "There are both surgical and nonsurgical treatments for rotational deformity. The right treatment for each patient will depend on the type and severity of their deformity, as well as previous treatments they may have undergone. "

    Naturally I'd prefer to try the non-surgical approach referenced in the last quote first. I can't overestimate how hesitant I would be to subject myself to a surgery which involves cutting all the way through the leg bones. But someone who takes the deformity possibility seriously could probably find the non-surgical intervention that can finally help, given that the actual problem is finally identified - assuming that is the diagnosis.



    I'm nearly convinced that the above fits my situation perfectly. An actual structural deformity, that was acquired how I don't know would seem to explain from my uneducated perspective literally EVERY symptom I have. Literally everything. And it would perfectly explain why none of the activation/stability stuff I've done has had literally any effect whatsoever. Literally none. And it would perfectly explain why nothing any PT has ever said to me has made any sense of how my legs feel. I'm an engineer. Rational to the core and skeptical to no end. I'm not satisfied until something adds up, and I never take anyone's word for something, unless I absolutely have no means of evaluating their claims, as in quantum mechanics. If I can put their claims in any meaningful context I will subject them to scrutiny. If it doesn't make sense to me, there is a good chance it doesn't make sense at all.

    I need to find a doctor that can approach this problem from the perspective mentioned on that webpage. Hopefully within a day's drive. Otherwise I'll have to end up going to Houston which is almost 2000 miles away.

    I've googled for this type of stuff but I've literally come up with nothing close to what the Sander's Clinic web page talks about.

    I don't care for that positivity stuff. Everyone has troubles and tragedies. It's not about who's got it worse. It's about finding solutions for everyone whatever their status is. Saying others have it worse does nothing to help my situation. Regardless, in some ways, the ambiguous nature of my problem makes it worse, at least psychologically, than what would superficially appear to be a worse physical problem.
    Last edited by Bradley; 07-19-2014 at 01:44 PM.

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