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Thread: Help

  1. #1
    Bradley is offline Senior Member
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    Default Help

    Leg problems. Going on 11 years. I'm a mess. How do I get ACTUAL help? No one seens to give a shi*. Doctors, pt's, no one cares if I get better or worse. No one seems to have any commitment to seeing anything through.

    I've been diagnosed with tibial varus (or was it valgus) of 4 degrees in both legs and a rotational deformity of 8 degrees in my right tibia, but the surgeon was utterly unwilling to try to explain how that related to my symptoms. He just recommended surgery. Sawing through my legs with out explaining hoe it would address how my legs feel.

    I have no idea how to get actual competent, and attentive treatment.

    I have no idea how to even begin addressing my problems after 10 years.


    How do I find ACTUAL committed help? 20 doctors and pt's and literally all of them have been an utter disappointment. None of them were committed to getting me better.

    I'm losing my mind because no one seems to know how to help or actually care.

  2. #2
    saintm is offline Senior Member
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    Quote Originally Posted by Bradley View Post
    Leg problems. Going on 11 years. I'm a mess. How do I get ACTUAL help? No one seens to give a shi*. Doctors, pt's, no one cares if I get better or worse. No one seems to have any commitment to seeing anything through. I've been diagnosed with tibial varus (or was it valgus) of 4 degrees in both legs and a rotational deformity of 8 degrees in my right tibia, but the surgeon was utterly unwilling to try to explain how that related to my symptoms. He just recommended surgery. Sawing through my legs with out explaining hoe it would address how my legs feel.I have no idea how to get actual competent, and attentive treatment. I have no idea how to even begin addressing my problems after 10 years.How do I find ACTUAL committed help? 20 doctors and pt's and literally all of them have been an utter disappointment. None of them were committed to getting me better.I'm losing my mind because no one seems to know how to help or actually care.
    Well, OK,

    A) Nobody on a forum is going to be able to give you competent advice. Even if a practicing orthopedic surgeon just happened to see this post, he'd have to see your X-rays and at least a few good photos of your legs to even begin to give you an opinion. Even then, a doctor wouldn't do it for all sorts of professional reasons.

    B) Don't know if it's 'valgus' or 'vaRus'? You might want to get that straight before you start seeking a 21st opinion. There's a big difference between the two.

    C) How many orthopedic/ sports medicine specialists did you actually ask? If 3 or more unrelated specialists in the same area actually tell you the same thing, you might want to heed that message. It pains me as a Physical Therapist Assistant to say this, but "exercise" doesn't fix everything. If your long past puberty, then it's very possible you may need to go under the knife. Just one man's opinion.

    D) Get an opinion from another Orthopedic specialist. Calmly ask him to explain the nuances of what any surgery may entail (what's getting shaved, cut, re-attached, whatever). I've never met a surgeon worth his salt who DIDN'T try to explain his surgical strategy to their patient.

    I hope this helps, but again, your asking a major question to people on an internet forum. There's not much to be done with that.

  3. #3
    Eoin Kenny is offline Senior Member
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    Quote Originally Posted by Bradley View Post
    I've been diagnosed with tibial varus (or was it valgus) of 4 degrees in both legs and a rotational deformity of 8 degrees in my right tibia, but the surgeon was utterly unwilling to try to explain how that related to my symptoms. He just recommended surgery. Sawing through my legs with out explaining hoe it would address how my legs feel.

    I'm losing my mind because no one seems to know how to help or actually care.
    You never said what your synthoms are? I really sympathise, your frustration is bleeding through your post and I wish I could help. However, I totally agree with the first response, no one here can help you the way you want. You did remind me of something I saw recently on the internet though... A girl was diagnosed with breast cancer and instead of taking her doctor's advice she went vegan and lived raw/juicing for two years in a bid to get rid of it (based on some random advice online). Now she has gotten too advanced to even operate and is pleading for more money online in order to go to Gerson Theraphy (€25,000).

    I can't give advice, I'm not in any way credited to, but for what it's worth if I were you I would try alternative treatments for a few months. Then, if that didn't work I would find a doctor I liked and do whatever they said.

    Good luck.

  4. #4
    ad5ly is offline Senior Member
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    For three or four years now I have been reading your posts on this problem you have. Believe me if I or anyone who hears you would help you if they could. If doctors, and other professionals in the medical field fail you, us ordinary fellas on this site have zero chance helping you. Until someone by chance comes on this site with the same exact problem you have and was treated successfully, and can give you something useful - its seems you will not get an answer. I think the pain you feel at this stage is much more than physical. You feel betrayed and alone. You are emotionally damaged. If you can't fix the physical part of you, then work on getting adequate emotional support. You sound alone and afraid imho...Dennis

  5. #5
    Bradley is offline Senior Member
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    Quote Originally Posted by saintm View Post
    Well, OK,

    A) Nobody on a forum is going to be able to give you competent advice. Even if a practicing orthopedic surgeon just happened to see this post, he'd have to see your X-rays and at least a few good photos of your legs to even begin to give you an opinion. Even then, a doctor wouldn't do it for all sorts of professional reasons.

    B) Don't know if it's 'valgus' or 'vaRus'? You might want to get that straight before you start seeking a 21st opinion. There's a big difference between the two.

    C) How many orthopedic/ sports medicine specialists did you actually ask? If 3 or more unrelated specialists in the same area actually tell you the same thing, you might want to heed that message. It pains me as a Physical Therapist Assistant to say this, but "exercise" doesn't fix everything. If your long past puberty, then it's very possible you may need to go under the knife. Just one man's opinion.

    D) Get an opinion from another Orthopedic specialist. Calmly ask him to explain the nuances of what any surgery may entail (what's getting shaved, cut, re-attached, whatever). I've never met a surgeon worth his salt who DIDN'T try to explain his surgical strategy to their patient.

    I hope this helps, but again, your asking a major question to people on an internet forum. There's not much to be done with that.
    I'm not looking for medical advice. I'm looking guidance as to how to get guidance from the professionals. I need confidence that going under the knife will help. And the surgeon was utterly unhelpful. And I just saw a PT today and I told them I wanted to know how the diagnosis related to symptoms but they weren't much help.

    No one is willing to help or seems to care all that much seeing this through.

    I need help finding help

  6. #6
    Bradley is offline Senior Member
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    Quote Originally Posted by Eoin Kenny View Post
    You never said what your synthoms are? I really sympathise, your frustration is bleeding through your post and I wish I could help. However, I totally agree with the first response, no one here can help you the way you want. You did remind me of something I saw recently on the internet though... A girl was diagnosed with breast cancer and instead of taking her doctor's advice she went vegan and lived raw/juicing for two years in a bid to get rid of it (based on some random advice online). Now she has gotten too advanced to even operate and is pleading for more money online in order to go to Gerson Theraphy (€25,000).

    I can't give advice, I'm not in any way credited to, but for what it's worth if I were you I would try alternative treatments for a few months. Then, if that didn't work I would find a doctor I liked and do whatever they said.

    Good luck.
    I'm where she is, except not dying. Except instead of doing my own thing, I've bee listening to the doctors, all the while pleading with them to consider more things are wrong. 9 years later I got a diagnosis. Doctors are failing at every turn.

    I need help finding competent, committed caring doctors who will not tolerate this continuing years longer.
    Do they even exist? I've met literally none. The doctors I like can't/won't help.

  7. #7
    Bradley is offline Senior Member
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    Quote Originally Posted by Eoin Kenny View Post
    You never said what your synthoms are? I really sympathise, your frustration is bleeding through your post and I wish I could help. However, I totally agree with the first response, no one here can help you the way you want. You did remind me of something I saw recently on the internet though... A girl was diagnosed with breast cancer and instead of taking her doctor's advice she went vegan and lived raw/juicing for two years in a bid to get rid of it (based on some random advice online). Now she has gotten too advanced to even operate and is pleading for more money online in order to go to Gerson Theraphy (€25,000).

    I can't give advice, I'm not in any way credited to, but for what it's worth if I were you I would try alternative treatments for a few months. Then, if that didn't work I would find a doctor I liked and do whatever they said.

    Good luck.
    That's where I am. Except I'm not dying, and I've been at it 5 TIMES LONGER.

    Doctors refuse to help. They aren't committed. The ones who don't have a meaningful diagnosis won't pursue one. The ones that have one won't explain it.

    I don't get it. It's as if they don't want to help. Why won't a surgeon explain the surgery?



    Where are the competent doctors who are actually committed to seeing patients through treatment and will explain everything step by step and explain how a diagnosis makes sense of symptoms and will explain how the surgery will treat the symptoms?


    I've seen 20 doctors and literally everyone has failed me, and none of them seemed to care if I ever get any effective treatment. Not a single of them is willing to see things through to the end.

    How do I find a good doctor? I've seen doctors at the Hospital for Special Surgery in NYC, supposedly one of the best hospitals in the world for orthopedics, 1 sports medicine doctor and 1 surgeon there, another guy in NYC at Lenox Hill Hospital, several physiatrists elsewhere, a neurologist, several others surgeons and sports medicine doctors, and not a single one is concerned that I'm 10 years into pursing treatment and COMPLETELY LOST.

    I mean, WTF. There has to be a better way to go about this.


    I'm not asking for medical advice. I'm asking for advice for getting medical advice.

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